Respite
Thank you.Thanks to all of you for thinking positive thoughts about my boy and my family.
It has been said before, but the NICU is a roller coaster. And just as sure as the cars go to sickening depths that threaten to smash you into a million pieces on a jagged patch of earth, they can also take you to dizzying heights.
Today was a better day.
Not ‘in the stratosphere’-type of high, but better than last weekend.
I will keep you all informed as we move forward.
It is still a long, rough road, but we might just get to travel it a little while longer.
[ed. note: Jorja news tomorrow, I promise…]
posted by Rob Barron at 10:12 PM
16 Comments:
IT'S GOOD TO SEE YOU BOTH SMILING!!
What a happy picture.
I am glad the roller coaster is going the other way.......still thinking of you.
Good morning, Robert. We haven't met, but we're kind of family. Kirsten has been one of our "assimilated" children since she, Ted, Jason, Sam and Jeff hooked up in high school. She is keeping us updated on what's happening with your son. Just want you to know people all across the country are praying for young Doss, for those who love him and for those who are caring for him.
If you have specific needs for us to pray about, please have Kirsten send them along.
For every parent, our kids are ours only as long as God gives them to us. Sometimes for just a little while, sometimes for longer than we feel capable of handling! Love and cherish Doss and Jorja all their days with you just the way you do now. And rest a little this day, knowing hundreds are lifting you all up in prayer, asking for God's mercy, protection provision and peace. I realize that is just so much church talk, unless you have experienced the power and presence of a holy God at work in his world. I hope you have or that you will as you find your way through this maze of fear and uncertainty surrounding your precious Doss. Our best to you, P.Pie, Jorja and the Grands.
Bonnie Farmer
Hey,Rob, I read one of your entries where you said you'd gladly give your life for your son's. I just got this email and it made me think of what you'd written. It's was written by a 3rd grade boy as a class assignment. I think he nailed it. Blfarmer
EXPLANATION OF GOD:
"One of God's main jobs is making people. He makes them to replace the ones that die, so there will be enough people to take care of things on earth. He doesn't make grownups, just babies. I think because they are smaller and easier to make. That way he doesn't have to take up his valuable time teaching them to talk and walk. He can just leave that to mothers and fathers."
"God's second most important job is listening to prayers. An awful lot of this goes on, since some people, like preachers and things, pray at times beside bedtime. God doesn't have time to listen to the radio or TV because of this. Because he hears everything, there must be a terrible lot of noise in his ears, unless he has thought of a way to turn it off."
"God sees everything and hears everything and is everywhere which keeps Him pretty busy. So you shouldn't go wasting his time by going over your mom and dad's head asking for something they said you couldn't have."
"Atheists are people who don't believe in God. I don't think there are any in Chula Vista. At least there aren't any who come to our church."
"Jesus is God's Son. He used to do all the hard work, like walking on water and performing miracles and trying to teach the people who didn't want to learn about God. They finally got tired of him preaching to them and they crucified him But he was good and kind, like his father, and he told his father that they didn't know what they were doing and to forgive them and God said O.K."
"His dad (God) appreciated everything that he had done and all his hard work on earth so he told him he didn't have to go out on the road anymore. He could stay in heaven. So he did. And now he helps his dad out by listening to prayers and seeing things which are important for God to take care of and which ones he can take care of himself without having to bother God. Like a secretary, only more important."
"You can pray anytime you want and they are sure to help you because they got it worked out so one of them is on duty all the time."
"You should always go to church on Sunday because it makes God happy, and if there's anybody you want to make happy, it's God!
Don't skip church to do something you think will be more fun like going to the beach. This is wrong. And besides the sun doesn't come out at the beach until noon anyway."
"If you don't believe in God, besides being an atheist, you will be very lonely, because your parents can't go everywhere with you, like to camp, but God can. It is good to know He's around you when you're scared, in the dark or when you can't swim and you get thrown into real deep water by big kids."
"But...you shouldn't just always think of what God can do for you. I figure God put me here and he can take me back anytime he pleases.
And...that's why I believe in God."
That is much better news.
You all are beautiful, strong and worthy of praise. Sending much love, much prayer, and much hope. You are never far from my thoughts.
Nancy B.
Kim and I said a prayer for you last night. It is good to see a brighter day for both of you!
Thinking of you guys and watching for updates.
I remember one of our NICU nurses telling us one time, take it hour by hour, minute by minute if you must. The NICU is oftentimes so harsh.
Continue to send good vibes and prayers your way.
Congratulations on your two beautiful children..You guys are in our prayers.
Not Beth
Over here at The Wonder Twins, we've been watching and hoping and pulling for your family's health, but in particular, Doss's given the circumstances.
From one twin family to another - best to you all.
w&d
Yay, a family picture! I'm glad he had a good day :)
So glad to hear Doss had a better day.
That's good news. I hope every day following this one gets better and better.
Take care.
I recently found your blog through Babes in Blogland and I just had to send my thoughts and well wishes your way.
My daughter (a singleton) was born on Feb. 1 and started having seizures within her first 12 hours of life. She was transported from our hospital to a NICU about 25 miles away and diagnosed the next day with a brain bleed (I don't know what grade--your info made me realize that no one ever told me and I didn't know to ask). Only time will tell us what the future holds for her.
The NICU experience was hell, pure and simple. Even one of our NICU nurses voiced that same sentiment as her opinion of where she works. I've no doubt that you're dealing with some serious emotions, thoughts, etc. I know I am and it's been a couple of weeks now since she came home. It's all a lot to process and so darn painful and overwhelming.
I'm no expert in the NICU or anything like that but I know that you know there are good days and bad days. How I hope that Doss's good days far outweigh the bad ones going forward. And how I wish so very much that neither you nor I (nor anyone else who's had a child in the NICU) had to know this experience firsthand.
Hey guys! Just wanted to let you know that my thaughts are with all of you and that you have people in KS sending prayers your way.
Bruce
What a lovely picture, thinking of you and as said here already, good to see things improving.
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